Exciting times – Splint Saga part 3

An ongoing issue with my CMT is managing my leg braces. From wearing worn out pairs for years, to debilitating breakages and AFOs that are simply too small and not tailored enough. I'm hoping that this stress can be relieved in the next 4 weeks. I currently use 'bilateral rigid ankle foot orthoses' and have... Continue Reading →

What I have achieved in 12 months

Like everyone I have had my ups and downs this year. It's very easy to dwell on the downs but today I want to think about all of the great things I have achieved in the last 12 months Despite of my big wobble in September, when my leg splints broke I think I can... Continue Reading →

An update on my AFO crisis

Since my previous post many of you have offered me a great deal of support and kindness which I am so grateful for. It’s easy to feel isolated and alone when you are struggling with a mobility issue, as it’s your own personal burden to bare. Support can make that weight feel a little lighter. Thank... Continue Reading →

Just how toxic is the word ‘retard’?

This post will mostly state the obvious. Discussing an already widely accepted belief that using the word ‘retarded’ or 'spaz' to describe someone or something is just a no go. Both of these words need to go in the bin as soon as possible. I’m going to tell you why retard is so offensive.  ... Continue Reading →

Brace Yourselves.

“Don’t ever let anybody tell you they’re better than you, Forrest. If God intended everybody to be the same, he’d have given us all braces on our legs.” Mrs Gump.    This post is going to be about needing to wear leg splints. If you know me personally, you would know that I need to... Continue Reading →

A brief history of my disability

When I was younger, maybe around the age of 7, I remember we used to have to run around the playground in primary school during P.E. I used to hate P.E because I was so weak and didn’t understand why I wasn’t as good as the other children. I vividly remember running around this track... Continue Reading →

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