Adversity is something we have all dealt with throughout our lives. From minor adversities to larger ones, they are all valid in the pain they can cause us. Losing a job, friends, partners, loved ones, or developing a disability or illness to name a few. Any change in your life that has a negative impact on... Continue Reading →
A letter to myself: Reflecting on my 2019
It's that time of year. It's pretty crispy outside, colourful lights are starting to twinkle, Christmas is getting rammed down our throats in that typical CONSUME and SPEND trap that we fall into every single year. I'm a celeb is nearly finished and the Coca-Cola ad has landed, Christmas plans are being made and I'm... Continue Reading →
Exciting times – Splint Saga part 3
An ongoing issue with my CMT is managing my leg braces. From wearing worn out pairs for years, to debilitating breakages and AFOs that are simply too small and not tailored enough. I'm hoping that this stress can be relieved in the next 4 weeks. I currently use 'bilateral rigid ankle foot orthoses' and have... Continue Reading →
What I have achieved in 12 months
Like everyone I have had my ups and downs this year. It's very easy to dwell on the downs but today I want to think about all of the great things I have achieved in the last 12 months Despite of my big wobble in September, when my leg splints broke I think I can... Continue Reading →
An update on my AFO crisis
Since my previous post many of you have offered me a great deal of support and kindness which I am so grateful for. It’s easy to feel isolated and alone when you are struggling with a mobility issue, as it’s your own personal burden to bare. Support can make that weight feel a little lighter. Thank... Continue Reading →
My current AFO struggle.
I’ve often said how grateful I am to have access to AFO leg splints. They have given me the level of physical support and freedom that I am very happy with. Since I began wearing them at age 11 they have become a part of my life, an aspect of my world which I am... Continue Reading →
Just how toxic is the word ‘retard’?
This post will mostly state the obvious. Discussing an already widely accepted belief that using the word ‘retarded’ or 'spaz' to describe someone or something is just a no go. Both of these words need to go in the bin as soon as possible. I’m going to tell you why retard is so offensive. ... Continue Reading →
Chronically Cute Cards
A few months ago I was scrolling through Twitter and I came across a Tweet written by a person called Ruby (you can check out her Twitter page here). Ruby is an active member of the online disabled community, and I had seen her name before on multiple occasions; she would often engage with popular... Continue Reading →
A stranger’s curiosity does not trump my right to privacy
This blog post is going to be a bit of a rant… I have been thinking about this a lot recently. Is it really so bad if a stranger asks about your condition? I often get people asking me “what are those things on your legs?” “what’s wrong with your hands?” and it honestly annoys... Continue Reading →
“Nothing sadder than a hot person in a wheelchair.”
I would like to start this blog post by noting that this Tweet is from 2014. The tweet may be 4 years old but disabled people have heard this sentiment their entire lives. The message behind this tweet is just as relevant in 2018 as it was then and it’s important to recognise ableist attitudes... Continue Reading →